People who know FSHD

People from all walks of life know FSHD. They are patients, loved ones, doctors, scientists, researchers, engineers, welfare services providers and many more. They share their story about FSHD.


I have always been a very lucky person

I have always been a very lucky person. Everything was working out in my life just fine, without much effort on my side. I finished the school with honors and was admitted in one of the most prestigious  universities of Moscow.


We will make it

I am a boy affected with FSHD and for this reason, momentarily, for the last 7 years, I have been confined to a wheel-chair. I really want to underline “momentarily”, as my biggest dream is that, one day, I will be able to walk like everyone else.