People who know FSHD

People from all walks of life know FSHD. They are patients, loved ones, scientists, researchers, engineers, welfare services providers and many more. They share their story about FSHD.


I have always been a very lucky person

I have always been a very lucky person. Everything was working out in my life just fine, without much effort on my side. I finished the school with honors and was admitted in one of the most prestigious  universities of Moscow.