20th June 2022 is World FSHD Day!

June 19, 2022 By Bine Haase

We’ve made a profile picture frame for the upcoming World FSHD Day that anyone who wants to participate can use to “beautify” their profile picture on Facebook, Twitter, Instagram, LinkedIn and other social media platforms and hopefully raise awareness about FSHD and people living with this rare condition.

Here are the instructions:
1. click on this link: twb.nz/worldfshdday2022
2. click on the button ” Choose a photo” below the profile picture frame and select your desired profile picture
3. if necessary, align the inserted profile picture within the frame and then click on “Next”
4. click on “Download”
5. this photo can now be uploaded to your Facebook profile and used as a profile picture for World FSHD Day.

Of course you are welcome to share and spread the idea!

Every photo, every post with a hashtag helps us to make FSHD better known and to raise awareness around the world!
#cureFSHD #WorldFSHDDay #FSHDEurope