News

Information for people with FSHD regarding Covid-19

fshdsociety.org/2020/03/10/fshd-and-covid-19/

Here are a few tips for people with neuromuscular diseases and what you may need to consider nationally (available in many different languages): https://www.enmc.org/covid-19-and-people-with-neuromuscular-disorders/

Finding a treatment:

Acceleron will not conduct further clinical trials of ACE-083 in FSHD (https://www.fshdsociety.org/2019/09/16/disappointing-news-from-acceleron/)

Facio announces completion of real-world data study in FSHD (https://www.facio-therapies.com/news/facio-announces-completion-of-real-world-data-study-in-fshd/)

miRecule, Inc., is developing a novel treatment for FSHD (https://www.fshdsociety.org/2019/11/08/mirecule-inc-is-developing-a-novel-treatment-for-fshd/)

Other news:

DUX4 is misexpressed in tumors, where it suppresses anti-tumor immune activity (link to full article).