FSHD Europe came together in the weekend of 18-20 October 2024 in France for our General Assembly Meeting. First, we had a wonderful tour at the laboratory of Généthon / AFMThéléthon in Evry and learned about gene therapy development for rare diseases. During the following days, patient representatives of our 13 member organisations came together. We had a very productive and enjoyable meeting where we recognized how far we have come, identified challenges and opportunities, set our strategy, and defined activities to realise our goals. Thank you to all participants for this great weekend! FSHD Europe is the united voice of people with FSHD.