The Care and Trial Site Registry (CTSR) is a valuable online platform aimed at advancing clinical research in neuromuscular diseases. By enrolling your site in the CTSR, you become part of a global network of specialized centers, which enhances your site’s visibility to researchers, industry partners, and patients. This increased exposure can foster collaborations and help accelerate progress in clinical trials and treatment developments.
Why Register?
The CTSR provides critical site-level information—including facilities, equipment, personnel, trial experience, and aggregated patient data—to support clinical research and trial feasibility. It does not contain identifiable patient data.
Benefits of Registration
✔ For Healthcare Providers:
– Increased visibility among patients, researchers, clinicians, and industry
– Potential participation in clinical trials and research collaborations
– Participation in an international network of specialized neuromuscular and neurodegenerative disease centres
✔ For Industry & Researchers:
– A single point of access for trial feasibility assessments
– Access to a trusted network of specialized trial sites
– Improved recruitment through integration with patient registries
Get Involved – Registration is Free!
Sign up here: Care and Trial Site Registry to become part of this growing research network. The CTSR intake questionnaire will guide you through the relevant details for your specialization.
[View the CTSR questionnaire here: Care and Trial Site Registry]
We invite you to join us in strengthening FSHD research and advancing clinical trial readiness across Europe. If you have any questions or wish to discuss potential collaborations, please contact us at adrian.tassoni@uniklinik-freiburg.de or ria@fshd-europe.info .