Nicol Voermans and Ria de Haas had the privilege of presenting at the Annual EURO-NMD Meeting in Essen. They highlighted the work of FSHD Europe and the FSHD European Trial Network, sharing key insights with experts and patient advocates.
The European Reference Network for Rare Neuromuscular Diseases (EURO-NMD) connects 82 leading clinical and research centres across 25 countries, along with dedicated patient organizations. Together, they work to advance care, research, and collaboration for rare neuromuscular diseases.
