The FSHD ETN hopes that you have made a good start of 2024!! We are very pleased with the steps already taken and work that has been done, here we give you a short update on our activities and plans for this year.
FSHD University webinar featuring FSHD ETN chair Dr. Nicol Voermans
While FSHD patients wait for new drugs to slow the progression of muscle weakness, Dr. Voermans emphasizes that there are many interventions already that can have a significant positive benefit. She encourages everyone with FSHD to do what they can to be as healthy and “trial fit” as possible.
A big welcome to our new Project Manager!
We are pleased to announce the appointment of Ria de Haas as Project Manager for both FSHD Europe and the FSHD European Trial Network.