FSHD Europe establishes European Trial Network

March 16, 2021 By Bine Haase

FSHD Europe is proud to announce the establishment of the project “FSHD European Trial Network”. We have initiated and coordinated this project with Nicol Voermans, MD, PhD Neurologist as chair and Pascal Laforet, MD, PhD Neurologist as vice chair. George Padberg, MD, PhD and Baziel van Engelen, MD, PhD are the advisors.
FSHD Europe has taken this initiative to support collaboration to reach trial readiness, building on current research on FSHD in Europe. Although there have been a number of research workshops held in recent years, these have not yet led to a solid trial network in Europe, which is why FSHD Europe seeks to bring this together.
The online workshop will be organised by invitation and has a limited number of participants from the presently active research community, in addition to clinicians and clinical researchers from other groups and patient representation.
Session 1: 23rd April 2021
Session 2: 7th May 2021

The program will follow.
The results of the workshop will be a position paper that will be presented at the International Research Conference on FSHD (organised by the FSHD Society) on June 24th and 25th, 2021.
For more information about this project, the core group of experts and much more visit our website: https://fshd-europe.info/fshd-european-trial-network/