Contact
The Board
President
Co-Chair / Secretary
Coordinator of Patient Interests
Treasurer
Members
Patient Representatives
(in outside organisations)
Stefania Bertucci
Guiseppe Ferrante
Ricardo Gerpe
Scientific Advisors
Medical Advisor
(Liason FSHD ETN)
Project Advisors
Languages
🇬🇧 We speak ENGLISH:
🇪🇸 Hablamos ESPAÑOL:
Maria Gómez-Rodulfo
María Vríens-Muñoz Bravo
🇮🇹 Parliamo ITALIANO:
Annalisa Alimandi
Paola de Donato
🇫🇷 Nous parlons FRANÇAIS:
Hicham Alaoui Fdili
Sylvie Genet
🇩🇪 Wir sprechen DEUTSCH:
🇳🇱 Wij spreken NEDERLANDS: