No vacancies
At the moment, we have no vacancies. We encourage you to sign up to our newsletter to stay in touch and follow our news.
Volunteer with us
We are keen to connect with members of the FSHD community, people living with FSHD and carers, who may be interested in volunteering.
For example, we may need patient representatives, patient advisory council members, and support for our communications work. We may need extra occasional help at meetings or conferences.
Does this call your name? Would you like to share your expertise, your lived experience and professional skills? Please read this overview and get in contact with us.
We look forward to hearing from you!