We are very proud to celebrate our president, Sheila Hawkins, who has been honoured with the Lifetime Achievement Award from Muscular Dystrophy UK.
A dedicated advocate for families affected by FSHD, Sheila has made a lasting impact through her work with Muscular Dystrophy UK, on their board and other committees and with FSHD Europe, she has also pushed for greater inclusivity in fashion, encouraging brands to design clothing for people with limited mobility.