The second edition of the Summer School on Multidisciplinary Management of Neuromuscular Diseases, co-organized by the European Reference Network for Rare Neuromuscular Diseases (ERN EURO-NMD) and the French network of expertise on NMDs (FILNEMUS) is scheduled for 24 – 27 September 2025.
The program arose from the need for a comprehensive approach addressing all stages of the clinical pathway for NMD patients, extending beyond the neuromuscular sphere. Its inclusive scope emphasizes the importance of multidisciplinary care for diverse neuromuscular conditions.
Participants will benefit from expert insights shared by a highly qualified Faculty, including clinicians representing various disciplines, psychologists, a speech and language expert, a dietitian, and patient representatives.
Particular attention will be given to the importance of using appropriate communication in sensitive situations, such as delivering a diagnosis, discussing palliative care, and to applying these skills in daily practice. A dedicated presentation and a hands-on session featuring patient representatives will provide direct insights into the patient journey.
Attendees will gain a comprehensive understanding of the multidisciplinary approach to NMD care, which will help them develop new perspectives and practical skills to enhance care in their respective teams and institutions.
For more information and registration:
Summer School on Multidisciplinary Management of Neuromuscular Diseases – European Reference Network
