FSHD Connect Europe 2025
FSHD Europe will organize, in collaboration with the FSHD Society, the first FSHD Connect Europe meeting on June 13th – June 15th, 2025, in Amsterdam, The Netherlands. This is a networking meeting for FSHD patients and their families. Attendees will be informed about the latest research, drug development, and clinical trials, as well as managing symptoms and improving quality of life. It is a great opportunity to connect with other patients and families across Europe. More details will follow early 2025 on our website and in our newsletter. We hope to see you there!
Registration for the Connect Meeting will begin in January. A limited number of tickets will be available. Follow updates for the meeting via the newsletter. If you are not already receiving the FSHD Europe newsletter, please sign up.
Donations
Help Make FSHD Connect Europe 2025 a Reality!
FSHD Europe, in collaboration with the FSHD Society, will host the first-ever FSHD Connect Europe meeting from June 13th – 15th, 2025 in Amsterdam, The Netherlands. This conference is an essential gathering for individuals and families affected by Facioscapulohumeral Muscular Dystrophy (FSHD), bringing together patients, families, clinicians, researchers, and advocates to share the latest breakthroughs in research, drug developments, and clinical trials.
The conference will offer:
- Immersive learning experiences and workshops
- Opportunities to connect with others facing similar challenges
- Insights into managing symptoms and navigating daily life
To make this event accessible to all FSHD patients and families, we need your support. We are asking for your financial contribution to help cover the costs of organizing this important meeting and ensuring that those impacted by FSHD can participate. Your donation will directly benefit the FSHD community and help create a valuable experience for everyone involved.
Every contribution counts, and together, we can make a meaningful difference in the lives of those affected by FSHD.
Donate today and help make FSHD Connect Europe 2025 possible!
For donations or more information, please contact:
ria@fshd-europe.info