FSHD Connect Europe

FSHD Connect Europe 2025 register now!

FSHD Europe, in collaboration with the FSHD Society, is excited to announce the first FSHD Connect Europe meeting, taking place from June 13th to June 15th 2025 in Amsterdam, The Netherlands.

This exclusive event brings together FSHD patients and their families, clinicians, and researchers. It is a unique opportunity to connect, share experiences and building lasting connections.

Don’t miss out on this exceptional opportunity to be part of the FSHD
community’s growth! Spaces are limited, so register early to secure your spot.

Join us at the FSHD Connect Europe Meeting in Amsterdam, June 13th – June 15th, 2025!
For more details about the FSHD Connect Europe Meeting, including the program, event information, location, and registration, please visit our registration website. Here, you can also reserve your hotel and secure your spot.

Get all the details you need to make the most of this exciting event.
We look forward to welcoming you in Amsterdam!

Join us on Linkedin or Facebook.

Donations

Help Make FSHD Connect Europe 2025 a Reality!

FSHD Europe, in collaboration with the FSHD Society, will host the first-ever FSHD Connect Europe meeting from June 13th – 15th, 2025 in Amsterdam, The Netherlands. This conference is an essential gathering for individuals and families affected by Facioscapulohumeral Muscular Dystrophy (FSHD), bringing together patients, families, clinicians, researchers, and advocates to share the latest breakthroughs in research, drug developments, and clinical trials.

The conference will offer:

  • Immersive learning experiences and workshops
  • Opportunities to connect with others facing similar challenges
  • Insights into managing symptoms and navigating daily life

To make this event accessible to all FSHD patients and families, we need your support. We are asking for your financial contribution to help cover the costs of organizing this important meeting and ensuring that those impacted by FSHD can participate. Your donation will directly benefit the FSHD community and help create a valuable experience for everyone involved.

Every contribution counts, and together, we can make a meaningful difference in the lives of those affected by FSHD.

Donate today and help make FSHD Connect Europe 2025 possible!

For donations or more information, please contact:
ria@fshd-europe.info