-
Our objective is to be the voice and
the ears of people with FSHD
throughout Europe.
WHAT CAN WE DO FOR YOU?
See me, hear me
and listen.
-
We work to raise awareness, understanding and
knowledge of FSHD. We reach out to people with FSHD,
clinicians, scientists, and many more.
CHECK OUT OUR PARTNERS
We stand together:
patients & scientists
united
-
We aim to provide an FSHD knowledge platform
sharing information and best practices.
READ OUR STORIES
We share knowledge
and best practices
-
Help us to foster a culture of collaboration
amongst the different people living and working
with FSHD.
GET INVOLVED
Join us in
our fight
Our objective is to be the voice and